'Time to live': How Mike Rannie stays positive despite ALS diagnosis - Action News
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Ottawa

'Time to live': How Mike Rannie stays positive despite ALS diagnosis

One year after being diagnosed with ALS, Mike Rannie can no longer play piano like he used to, but he is one of the leading fundraisers in Ottawa's Walk for ALS, taking place on Saturday.

Ottawa man a leading fundraiser in Saturday's Walk for ALS

Mike Rannie was diagnosed with ALS last year. He can no longer use his right hand to play piano, but sometimes plays with his left. (Hallie Cotnam/CBC)

It's been ayear since Mike Rannie was diagnosed with ALS, and his piano now sits mostly silent.

Rannie, now 53, had been playingsince he was six years old. That slowly changed after his diagnosis.

"It's always been part of my life. I remember I used to dream as a kid, I wanted to be a rock star," Rannietold CBC's Ottawa Morning.

I've tried crying,I've tried laughing, and I like laughing better.- Mike Rannie

Amyotrophic lateral sclerosis, also known as Lou Gehrig's disease, causes nerve cells that control muscle movement to die.Over time ALS patients lose the ability to walk, talk, and eventually breathe.

Rannie stopped playing piano almost immediately after he started losing control of his right hand.

"I couldn't manipulate the fingers properly, and the right hand is playing the melody so it's hard to play anything at that point."

He will still hit a few keys with his left hand these days, but usually with just one finger.

"It's just not the same thing anymore."

Staying positive

Playing piano is not the only hobby Rannie has had to curtail. He can no longerwrite orplay video games, and even turning thepage of a book has become difficult.

Despite the loss of some of his hobbies, Ranniesaid he likes to stay positive.

"I've got to deal with what I can do now."

ALSis a terminal illness with almost no treatment, and Rannie said he knows his time is limited. But he said his diagnosis has allowed him to pursue some bucket list items, including a recent trip to Paris with his wife.

"I would have left those untillater on ... and you just never know when your time is going to come up. So it just emphasizes, 'OK, time to live.'"

Rannieis participating in the Walk for ALStaking place in Ottawa on Saturday. He's also captaining the top fundraising team, and has managed to raise more money than any of his teammates.

Ranniesaid people have asked him how he's been able to keepa smile on his face since his diagnosis.

"I've tried crying,I've tried laughing, and I like laughing better."

With files from Hallie Cotnam