Quebec health minister apologizes for end-of-life care for Robert Bourassa's widow at St. Mary's Hospital

The regional health board that oversees St. Mary's Hospital in Montreal says it will conduct an internal investigation into the end-of-life carethe widow of a former Quebec premier received there,after her family said she suffered needlessly in her final days.

The family's description of Andre Simard'streatment prompted Quebec Health Minister Christian Dubto offer them his apologies"in my name and that of the network," while the minister responsible for end-of-life care, Sonia Blanger, said the responsible health board must "review practices at St. Mary's Hospital so that a situation like this one never happens again."

Simard, the widow offormer premier Robert Bourassa, died lastNovember, several days after being admitted to the hospital in Montreal's west end.

Bourassa, who served as premier from 1970 to 1976 and from 1985 to 1994, oversaw the implementation of Quebec's public health care system. He died in 1996.

The couple's daughter, MichelleBourassa,saidher mother, a discreet woman,was admitted tothe hospital with her maiden name and did not want to receive special treatment because of her status as the longtime premier's widow.

Soon after Simard was admitted,it became clear shewas going to die,Bourassa said ina lengthy letter to the hospital administration which sheshared with the French newspaper, La Presse.

Denied a transfer to the palliative care unit, every request by the family to get appropriate care for Simard in her final hours turned into a pitched battle, Bourassa said.

"I must express to you all my indignation at the way she, as well as our family, were treated at St. Mary's Hospital, especially by the staff on the eighth floor," Bourassa wrote.

With their mother suffering and in pain, family members pleadedwith staff to meet with an attending physician and to increase the dosage of sedation Simardwas receiving butwererepeatedly turned away or ignored, she said.

"All we can do is try to process this nightmare and let our family's wounds heal. But I can't leave this story untold, because I believe that this establishment has some serious soul-searching to do."

Simard was initially in a small room with another patient who had COVID-19, and there was barely enough room for visitors, Bourassa said. She said it was difficult to get staff to move her to a private room, even though she was entitled to it, according to the Act Respecting End-of-Life Care.

When her mother was moved a day later, Bourassa said, her new room had not been cleaned. It was littered with soiled medical equipment,including anempty syringe in the washroom.

The ensuing few days were increasingly tense,withBourassa raising her voice at times and staff threatening to remove her from her mother's room, she said.

Over the course of her mother's stay, shesaid, the family had several friends who are physicians stop by and assessSimard's situation because they felt abandoned by the hospital.

Bourassasaid it was only after a family friend who is a former director of palliative care at the McGill University Health Centre stepped inthat her mother "finally began to receive the care to which she was entitled."

"We had lost four precious days fighting," Bourassa wrote. Her motherdied a few hours later.

WATCH | MUHC palliative care director calls for better end-of-life care:

Problems with end-of-life care are widespread says McGill's director of palliative care

2 years ago

Duration 5:52

McGill University's director of palliative care, Dr. Justin Sanders, is speaking out about what he says are widespread problems with end-of-life care, following the death of Andre Simard. Her family says Simard, who was the widow of former Quebec Premier Robert Bourassa, was refused palliative care, at Saint-Mary's Hospital in Montreal.

"I understand very well the issues hospitals face: the lack of resources, the exhaustion of staff. But, on the eighth floor of St. Mary's Hospital, it is not the lack of resources that is in question, but rather, the lack of compassion and respect for fundamental rights," Bourassa wrote.

"The eighth floor of St. Mary's Hospital is a place where humanity and dignity have been forgotten."

Premier offers condolences, says situation is 'unacceptable'

In a written statement, aspokesperson for the CIUSSS de l'Ouest-de-l'le-de-Montral the regional health board that oversees the hospital said "the details reported by the family don't reflect the experience we wish to offer to our patients."

"We have launched an internal investigation and our medical team will evaluate the file to ensure that care was provided according to best practices," saidHlne Bergeron-Gamache.

"We are committing to implementing thenecessary adjustments. The team is also available to discuss with the family if it wishes to."

In a tweet Friday morning, Health Minister Dubapologizedto the familyand said "health professionals must work together to offer humane care."

Quebec Premier Franois Legault offered his condolences to the Bourassa family, describingthe details that surfaced about Simard's hospital stay as "unacceptable."

"No one should have to live through that in their last moments," Legaultsaid in a statement Friday. "In Quebec, we've chosen to have humane and respectful end-of-life care."

Not an isolated case: palliative expert

"I sincerely hope that our case is an isolated one," Simard's daughter said in her letter.

However, Dr. Justin Sanders, the director of palliative care at McGill University Health Centre, said he has seen similar situations arise daily, all across Quebec ironically, the province where the concept of palliative care was born.

"Reading a letter like this is heart-breaking," Sanders told CBC News."Yet I wasn't surprised."

"This is a major gap in our medical education system," said Sanders. He said while many hospitals have dedicated palliative-care units, where specialists and staff have the skills to take care of serious illness,"outside of those units, patients often receive care that is substandard to what we know is the gold standard."

Bourassa said the whole situation left her "ashamed of our health system and very concerned about what the future holds for my fellow citizens."

"I left the hospital in the early morning, after signing the necessary paperwork," she wrote."I was drained, sad, bitter and beside myself. All I wanted was to leave this awful place. I had just been deprived of an important, precious, serene and harmonious moment with the woman of my life, an exceptional woman, the wife of the man who was the father of Quebec health care. I could only think: what a shame!"

"For her, and contrary to what she would have liked because she always avoided controversy, I had no choice but to turn into a pitbull to protect her and her rights."