B.C. teen with scoliosis speaks out about 'disheartening' 20-month delay for surgery

AVancouver teen is speaking about enduring a near two-yearwaitfor surgery to correct scoliosis.

In a span of 20 months, 14-year-old Jane Childerhosehas gone from 35thplace on the wait-list at B.C. Children's Hospitalto just 32nd.

Meanwhile, herconditionwhich is causing her spine to grow in a pronounced "S" shapecontinues to worsen.

"It's really pushing at some of my other bones in my body," she said. "It makes my rib cage pop out my back. And it kind of makes my shoulder blades weird."

Jane, who says she lives with a "dull ache" from the scoliosis, calls the wait "disheartening."

Going public with her storyis not an attempt to jump the surgery queue, says her father. Rather, it's to shine a light on asituation dozens of young people are facing.

"Just back-of-a-napkin math, she'll be eligible for the surgery in over 10 years,"said Neil Childerhose. "There's just no way that can be a reality because the spine is curved to such a point that it puts pressure on her lungs and her heart."

A spokesperson for B.C. Children's Hospital says the first wave of the pandemic had an impact on surgeries, and that the hospital is facing increasing demands.

But communications manager Leslie Dickson also confirmed that the issue of spinal surgery delays existed before COVID-19 hit.

"We are seeing an increase in pediatric spinal surgery wait times at major hospitals across Canada, due to population growth and advances in spinal surgical procedures to treat conditions like scoliosis," she said.

"Some patients on B.C. Children's spine wait-list have wait times that are longer than the Pediatric Canadian Access Targets for Surgery benchmark of 180 days."

Dickson said the hospital isexploring ways to address the problem, including expanding operating room capacity.

Jane saidthe surgery she is waiting for will involve putting screws in her vertebraethat will attach to metal rods to pull her spine straight.

'Continue to get worse'

While the procedure sounds unpleasant anddaunting, it's also necessary.

"From my understanding, if it's not corrected, the curve of my spine will continue to get worse," she said. "Andthat would really hurt ... and it could also affect my ability to walk or just do normal things."

Jane's father says he hopes B.C. Health Minister Adrian Dix is aware of the delays and of the children who are suffering.

"Thebureaucrats that we've spoken to, they were well meaning for sure, but we're just not getting any results," Childerhose said.

"At this point we're worried that the longer we wait for surgery, the less effective the surgery will be...There are devastating consequences of waiting too long, such as paralysis."