Caregivers' needs shouldn't be overlooked by doctors, says Alzheimer Society of B.C.

When John Mann, frontman for the iconic Canadian Celtic rock band Spirit of the West, was diagnosed with early-onset Alzheimer's, his wife's world was turned on its head.

Jill Daum watched her husband slowly lose his memory and speech. She's now in charge of all his health decisions, manages the family's financesand is his primary caregiver.

"It's an incredible lossand it's aninescapableloss, because you're living with it every second," she told host Gloria Macarenko on CBC's BC Almanac."It's so difficult and so painful and draining as well."

According to the the Alzheimer's Society of B.C., more than one million Canadians are impacted by dementia, many of whom are also caregivers. The organization's CEO, Maria Howard, says many caregivers often end up completely overwhelmedbut get little support from the health system for their mental wellbeing.

"The health care system is still set up around 'the patient,'" said Howar."And theres not yet a lot ofrecognitionof what the caregivers [are going through]."

Time for achange

Alzheimer's is the most common form of dementia, a degenerative brain disease that slowly limits one's ability to think, rememberand perform daily physical functions.

Each case is unique, but symptoms tend to worsen over time.

It changes the personand this changes the relationship with the family, the caregiversandthe care partners," said Howar.

Watching a loved oneendure the disease can be traumatizing, so Howar says the Alzheimer's Society of B.C. is advocating for the Ministry of Health to change how doctors treat Alzheimer's and dementia patients by also including the health needs offamiliesandcaregivers.

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"We have to get the physicians muchmoreeducated, so when a person comes in that might have some symptoms ofAlzheimer's, doctor'sthink to ask how the caregivers are doing."

Howaralso says the ASBC wants to see increased training for health professionals, so they're more prepared to deal with Alzheimer's patients.

"It's surprising, but many of our healthcare professionals don't have that direct training. They don't have that knowledge," she said.

At the end of the day, she says increased engagement between caregivers and doctors will benefit both the patients and their loved ones.

"Just becausea person may now have a limitation because of Alzheimer's doesn't mean they can't give another way. We have to see the person first, rather than the disease."

With files from CBC's BC Almanac

To listen to the full interview, click on the audio labelled:Caregivers' needs shouldn't be overlooked by doctors, says Alzheimer Society of B.C.